The strength of information on retinoblastoma for the family of the child
Data
2018
Autores
Amador, Daniela Doulavince 
Marcilio, Ana Carolina
Souza Soares, Juliana dos Santos
Baptista Marques, Fernanda Ribeiro
Duarte, Adriana Maria
Mostrar mais
Tipo
Artigo
Título da Revista
ISSN da Revista
Título de Volume
Resumo
Objective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense suffering
the paths they take to obtain the information
and, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essential
it must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.
the paths they take to obtain the information
and, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essential
it must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.
Descrição
Citação
Acta Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018.