The strength of information on retinoblastoma for the family of the child

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dc.citation.issue1
dc.citation.volume31
dc.contributor.authorAmador, Daniela Doulavince [UNIFESP]
dc.contributor.authorMarcilio, Ana Carolina [UNIFESP]
dc.contributor.authorSouza Soares, Juliana dos Santos [UNIFESP]
dc.contributor.authorBaptista Marques, Fernanda Ribeiro [UNIFESP]
dc.contributor.authorDuarte, Adriana Maria [UNIFESP]
dc.contributor.authorMandetta, Myriam Aparecida [UNIFESP]
dc.coverageSao Paulo
dc.date.accessioned2020-07-08T13:09:55Z
dc.date.available2020-07-08T13:09:55Z
dc.date.issued2018
dc.description.abstractObjective: To understand the need for information from the family members of children with retinoblastoma. Methods: A qualitative study based on the Patient and Family Centered Care Model. Families of children undergoing treatment at a referral institution in pediatric oncology participated. Qualitative content analysis guided the data collection and analysis. Results: The strength of information on retinoblastoma for the family of these children reveals the value the family assigns to the information about the child's illness during a time of intense sufferingen
dc.description.abstractthe paths they take to obtain the informationen
dc.description.abstractand, the elements considered to be essential to feel fulfilled in their own right. Conclusion: Provision of information that respects the family's time is essentialen
dc.description.abstractit must be honest, and contemplate future perspectives for the child, in a dialogical space. Thus, a practice based on the Patient and Family Centered Care Model is promoted.en
dc.description.affiliationUniv Fed Sao Paulo, Escola Paulista Enfermagem, Sao Paulo, SP, Brazil
dc.description.affiliationUnifespUniv Fed Sao Paulo, Escola Paulista Enfermagem, Sao Paulo, SP, Brazil
dc.description.sourceWeb of Science
dc.format.extent87-94
dc.identifierhttp://dx.doi.org/10.1590/1982-0194201800013
dc.identifier.citationActa Paulista De Enfermagem. Sao Paulo, v. 31, n. 1, p. 87-94, 2018.
dc.identifier.doi10.1590/1982-0194201800013
dc.identifier.fileS0103-21002018000100087.pdf
dc.identifier.issn0103-2100
dc.identifier.scieloS0103-21002018000100087
dc.identifier.urihttps://repositorio.unifesp.br/handle/11600/54298
dc.identifier.wosWOS:000432486500013
dc.language.isoeng
dc.publisherUniv Fed Sao Paulo, Dept Enfermagen
dc.relation.ispartofActa Paulista De Enfermagem
dc.rightsinfo:eu-repo/semantics/openAccess
dc.subjectRetinoblastomaen
dc.subjectNeoplasmsen
dc.subjectChilden
dc.subjectFamilyen
dc.subjectHealth communicationen
dc.subjectInformationen
dc.titleThe strength of information on retinoblastoma for the family of the childen
dc.typeinfo:eu-repo/semantics/article
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