Síndrome das pernas inquietas em pacientes brasileiros: uma análise qualitativa sobre o sofrimento psicossocial e a atenção interdisciplinar
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Data
2015-02-29
Autores
Varela, Maria Jose Vilela de [UNIFESP]
Orientadores
Carvalho, Luciane Bizari Coin de [UNIFESP]
Tipo
Dissertação de mestrado
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Resumo do Artigo 1 Objetivos: O objetivo deste estudo é investigar os fatores psicossociais relacionados ao diagnóstico e tratamento de pacientes com a síndrome das pernas inquietas. Métodos Quinze pacientes com diagnóstico de SPI foram entrevistados no Ambulatório Neuro-Sono da disciplina de Neurologia da Universidade Federal de São Paulo (UNIFESP). Resultados Os resultados foram submetidos à análise de conteúdo qualitativo. Identificamos quatro categorias relevantes: Descrição da doença, História da doença, Experiência da doença e Relação com os outros. O descontrole sobre o corpo, aliado ao seu não reconhecimento pelo profissional, produz um estigma sobre os indivíduos e leva ao sofrimento dos pacientes. Conclusão A pesquisa ressalta a importância de fatores psicossociais para o diagnóstico e tratamento de pacientes com síndrome das pernas inquietas e a importância de ter equipes interdisciplinares para o atendimento de pacientes com síndrome das pernas inquietas.
Resumo do Artigo 2 Introdução: A síndrome das Pernas Inquietas (SPI) é um distúrbio neurológico que afeta o sono e a qualidade de vida de seus portadores, sendo caracterizado por uma necessidade irresistível em mover as pernas, pelas sensações desagradáveis. Objetivos O objetivo deste estudo é investigar como o entendimento e os manejos desta enfermidade, tendo em vista suas dimensões socioculturais, especialmente as de gênero/sexualidade, são constituídos a partir do tratamento e cuidados de um grupo de pacientes em São Paulo, Brasil. Métodos Quinze pacientes foram entrevistados no Ambulatório de Neuro-Sono, da Universidade Federal de São Paulo. Resultados Os resultados encontrados foram submetidos à análise qualitativa e o estudo identificou na condução da temática da sexualidade destes pacientes duas categorias importantes: Corpo-Movimento e O olhar dos outros. Os participantes referem que a dimensão sexual surge como um organizador do olhar do outro sobre a doença: no caso da mulher, quando a doença aponta para a sexualidade há um desvio para o descuido e, portanto, sofrimento. Conclusão Concluímos que esta condição no tratamento e no cuidado exige, assim, uma retificação do olhar do profissional de saúde para atender integralmente às demandas trazidas pelos sujeitos, especialmente as mulheres, considerando os limites e as possibilidades de sua inserção cultural e social, com importantes consequências para a atenção e o tratamento.
Abstract Artigo I OBJECTIVE The aim of this study is to investigate psychosocial factors related to the diagnosis and treatment of patients with restless legs syndrome. METHODS Fifteen patients were interviewed at the Neuro-Sono Outpatient Clinic, Universidade Federal de São Paulo. RESULTS The results were submitted to a qualitative analysis. We identified four content categories: illness description, illness history, illness experience, and relationships. Lack of control over the body and lack of recognition by professionals produce stigma and lead patients to suffering. CONCLUSION The research underscores the relevance of psychosocial factors to the diagnosis and treatment of patients with restless legs syndrome and the importance of having interdisciplinaryteams when attending patients with restless legs syndrome. Abstract Artigo 2 INTRODUCTION Restless legs syndrome (RLS) is a neurological disorder characterized by an irresistible and unpleasant urge to move one?s legs. Sleep and quality of life are affected in patients with RLS. OBJECTIVE The aim of this study is to investigate the understanding and management of this disease, with a view to sociocultural dimensions, particularly those related to gender and sexuality, by analyzing the treatment and care of a group of patients with RLS in São Paulo, Brazil. METHODS Fifteen patients were interviewed at the Neuro-Sono Outpatient Clinic, Universidade Federal de São Paulo. RESULTS A qualitative analysis of the results was performed, which identified two major categories for the management of issues of sexuality in these patients: Body Movement and The gaze of others. Participants' reports showed that sexual dimension colors the gaze of others with respect to their condition: the sexual connotations ascribed to RLS manifestations in women shift the other's gaze toward an uncaring perspective, which compounds patient suffering. CONCLUSION We conclude that management of this condition thus requires a reorientation of the medical gaze to ensure that the needs of patients' particularly women' are met comprehensively, while taking into account their limitations and possibilities for social and cultural inclusion. Such a reorientation could have major consequences for care and treatment.
Abstract Artigo I OBJECTIVE The aim of this study is to investigate psychosocial factors related to the diagnosis and treatment of patients with restless legs syndrome. METHODS Fifteen patients were interviewed at the Neuro-Sono Outpatient Clinic, Universidade Federal de São Paulo. RESULTS The results were submitted to a qualitative analysis. We identified four content categories: illness description, illness history, illness experience, and relationships. Lack of control over the body and lack of recognition by professionals produce stigma and lead patients to suffering. CONCLUSION The research underscores the relevance of psychosocial factors to the diagnosis and treatment of patients with restless legs syndrome and the importance of having interdisciplinaryteams when attending patients with restless legs syndrome. Abstract Artigo 2 INTRODUCTION Restless legs syndrome (RLS) is a neurological disorder characterized by an irresistible and unpleasant urge to move one?s legs. Sleep and quality of life are affected in patients with RLS. OBJECTIVE The aim of this study is to investigate the understanding and management of this disease, with a view to sociocultural dimensions, particularly those related to gender and sexuality, by analyzing the treatment and care of a group of patients with RLS in São Paulo, Brazil. METHODS Fifteen patients were interviewed at the Neuro-Sono Outpatient Clinic, Universidade Federal de São Paulo. RESULTS A qualitative analysis of the results was performed, which identified two major categories for the management of issues of sexuality in these patients: Body Movement and The gaze of others. Participants' reports showed that sexual dimension colors the gaze of others with respect to their condition: the sexual connotations ascribed to RLS manifestations in women shift the other's gaze toward an uncaring perspective, which compounds patient suffering. CONCLUSION We conclude that management of this condition thus requires a reorientation of the medical gaze to ensure that the needs of patients' particularly women' are met comprehensively, while taking into account their limitations and possibilities for social and cultural inclusion. Such a reorientation could have major consequences for care and treatment.
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Citação
VARELA, Maria Jose Vilela de. Síndrome das pernas inquietas em pacientes brasileiros: uma análise qualitativa sobre o sofrimento psicossocial e a atenção interdisciplinar. 2015. 140 f. Dissertação (Mestrado em Medicina Translacional) - Escola Paulista de Medicina, Universidade Federal de São Paulo (UNIFESP), São Paulo, 2015.