Desenvolvimento de um Inventário de Desempenho Ocupacional para crianças com TEA (6 a 8 anos)
Data
2021-08-06
Autores
Soares, Leticia Lourenço 
Orientadores
Zanni, Karina Piccin
Tipo
Trabalho de conclusão de curso
Título da Revista
ISSN da Revista
Título de Volume
Resumo
Introdução: A associação entre o Transtorno do Espectro Autista (TEA) e epilepsia é bastante frequente, sendo apontada a incidência de cerca de 23,5% pela literatura. As patologias atreladas ao TEA têm forte impacto na vida das crianças trazendo dificuldades e possíveis complicações a curto e longo prazo, além de maior probabilidade de dependência e consequente dificuldade em exercer um adequado desempenho ocupacional ao longo da vida. Objetivos: Construir um Inventário de avaliação do Desempenho Ocupacional para crianças de 6 a 8 anos com diagnóstico de TEA e TEA e Epilepsia; desenvolver formulários de caracterização da família e da criança com TEA e TEA e epilepsia; unificar os formulários de caracterização da criança e da família ao Inventário a fim de criar um instrumento que possa colher informações para agregar o diagnóstico, caracterização e intervenção. Metodologia: Os formulários de caracterização pretenderam colher, além do histórico de saúde da criança, características demográficas da criança e da família, tais como idade, gênero, status socioeconômico e nível educacional. A construção dos itens de avaliação do desempenho ocupacional deu-se a partir da revisão de literatura acerca do TEA, epilepsia e a interação entre as duas condições. O Inventário de Desempenho Ocupacional para Crianças com TEA (6 a 8 anos), conta com 7 domínios e totaliza 143 itens em sua primeira versão. Para arguição do Inventário foi necessária a verificação da validade de face e conteúdo (respectivamente cobertura adequada e completa do tema), além da análise semântica em todos os domínios e itens que estão sob investigação no instrumento (STREINER; NORMAN, 2008). Como critério de decisão sobre a pertinência de um item mediante ao traço a que teoricamente se refere deve haver concordância de, pelo menos, 80% entre os juízes (PASQUALI, 1998). Resultados: Seis entre sete domínios (85,7%) foram atestados como compreensíveis para pais/responsáveis, cuidadores, educadores e funcionários de instituições/clínicas. Os 142 itens presentes no Inventário apresentaram 100% ao nível de concordância (relevância para o contexto de TEA, epilepsia e faixa etária), 135 itens (95,1%) apresentaram 100% ao nível de compreensão, enquanto 7 itens (4,9%) foram avaliados como não compreensíveis. Após adequação dos itens de acordo com as exigências metodológicas e critérios do comitê de juízes, 34 itens foram modificados e o Inventário passou a somar 145 itens. Considerações finais: A construção do Inventário pretendeu preencher parte da lacuna literária sobre TEA em comorbidade à epilepsia, trazendo um instrumento para coleta e aferição de dados concretos sobre a incidência da epilepsia em crianças com TEA, além de buscar modos de avaliar de que maneira o TEA pode impactar no desempenho ocupacional de crianças, afetando diretamente no prognóstico e qualidade de vida.
Introduction: The association between Autistic Spectrum Disorder (ASD) and epilepsy is quite frequent, with an incidence of about 23,5% being pointed out in the literature. Pathologies linked to ASD have a strong impact on children's lives, addressing difficulties and possible complications in the short and long term, in addition to a greater probability of dependence and consequent difficulty in exercising satisfactory occupational performance throughout life. Objective: Build an Occupational Performance assessment Inventory for children aged 6 to 8 years with a diagnosis of ASD and ADS and Epilepsy. Develop forms to characterize the family and child with ASD and ASD and epilepsy; Unify the child and family characterization forms to the Inventory in order to create an instrument that can collect information to aggregate the diagnosis, characterization and intervention. Methodology: The characterization forms intended to collect, in addition to the child's health history, demographic characteristics of the child and family, such as age, gender, socioeconomic status and educational level. The construction of occupational performance assessment items was based on a literature review about ASD, epilepsy and the interaction between the two conditions. The Occupational Performance Inventory for Children with ASD (6 to 8 years old), has 7 domains and totals 143 items in its first version. In order to argue the Inventory, it was necessary to verify the face and content validity (which means respectively adequate and complete coverage of the subject), in addition to semantic analysis in all domains and items that are under investigation in the instrument (STREINER; NORMAN, 2008). As a decision criterion on the pertinence of an item according to the feature to which it theoretically refers, there must be at least 80% agreement among the judges (PASQUALI, 1998). Results: Six out of seven domains (85.7%) were attested as comprehensible to parents/guardians, caregivers, educators and institutions/clinics employees. The 142 items present in the Inventory presented 100% at the level of agreement (relevance to the context of ASD, epilepsy and age group), 135 items (95.1%) presented 100% at the level of comprehension, as 7 items (4.9%) were rated as not comprehensible. After adjusting the items according to the methodological requirements and criteria of the judges' committee, 34 items were modified and the Inventory ended up containing 145 items. Final considerations: The construction of the Inventory intended to fill some of the literary gap of ASD in comorbidity to epilepsy, bringing an instrument equal to collect and measure concrete data on the incidence of epilepsy in children with ASD, in addition to evaluate how the ASD can impact the occupational performance of children, directly affecting its prognosis and life quality.
Introduction: The association between Autistic Spectrum Disorder (ASD) and epilepsy is quite frequent, with an incidence of about 23,5% being pointed out in the literature. Pathologies linked to ASD have a strong impact on children's lives, addressing difficulties and possible complications in the short and long term, in addition to a greater probability of dependence and consequent difficulty in exercising satisfactory occupational performance throughout life. Objective: Build an Occupational Performance assessment Inventory for children aged 6 to 8 years with a diagnosis of ASD and ADS and Epilepsy. Develop forms to characterize the family and child with ASD and ASD and epilepsy; Unify the child and family characterization forms to the Inventory in order to create an instrument that can collect information to aggregate the diagnosis, characterization and intervention. Methodology: The characterization forms intended to collect, in addition to the child's health history, demographic characteristics of the child and family, such as age, gender, socioeconomic status and educational level. The construction of occupational performance assessment items was based on a literature review about ASD, epilepsy and the interaction between the two conditions. The Occupational Performance Inventory for Children with ASD (6 to 8 years old), has 7 domains and totals 143 items in its first version. In order to argue the Inventory, it was necessary to verify the face and content validity (which means respectively adequate and complete coverage of the subject), in addition to semantic analysis in all domains and items that are under investigation in the instrument (STREINER; NORMAN, 2008). As a decision criterion on the pertinence of an item according to the feature to which it theoretically refers, there must be at least 80% agreement among the judges (PASQUALI, 1998). Results: Six out of seven domains (85.7%) were attested as comprehensible to parents/guardians, caregivers, educators and institutions/clinics employees. The 142 items present in the Inventory presented 100% at the level of agreement (relevance to the context of ASD, epilepsy and age group), 135 items (95.1%) presented 100% at the level of comprehension, as 7 items (4.9%) were rated as not comprehensible. After adjusting the items according to the methodological requirements and criteria of the judges' committee, 34 items were modified and the Inventory ended up containing 145 items. Final considerations: The construction of the Inventory intended to fill some of the literary gap of ASD in comorbidity to epilepsy, bringing an instrument equal to collect and measure concrete data on the incidence of epilepsy in children with ASD, in addition to evaluate how the ASD can impact the occupational performance of children, directly affecting its prognosis and life quality.
Descrição
Citação
SOARES, Leticia Lourenço. Desenvolvimento de um Inventário de Desempenho Ocupacional para crianças com TEA (6 a 8 anos). 2021. Trabalho de Conclusão de Curso (Graduação em Terapia Ocupacional) - Instituto Saúde e Sociedade, Universidade Federal de São Paulo - Campus Baixada Santista, Santos, 2021.