Pacientes com DPOC divergem na avaliação do conhecimento pelo Bristol e na necessidade de informações pelo LINQ
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Data
2023-12-07
Autores
Nohara, Soraya Sayuri Braga [UNIFESP]
Orientadores
Jardim, José Roberto [UNIFESP]
Tipo
Dissertação de mestrado
Título da Revista
ISSN da Revista
Título de Volume
Resumo
Objetivo: Avaliar o conhecimento sobre a doença pulmonar obstrutiva crônica (DPOC) e a necessidade de informação dos pacientes com DPOC e suas correlações com escolaridade, sexo, idade e tempo de acompanhamento. Além de analisar a concordância das respostas do LINQ nos modos presencial e por telefone. Métodos: Foram selecionados indivíduos de ambos os sexos, entre 40 e 94 anos, com diagnóstico de DPOC, de modo consecutivo, que estavam em acompanhamento no Ambulatório de DPOC da Escola Paulista de Medicina. Os voluntários foram submetidos a coleta de dados referentes à idade, sexo, raça, escolaridade, valores espirométricos, COPD Assessment Test (CAT), modified Medical Research Council (mMRC), número de exacerbações e sua gravidade. As necessidades de informação e conhecimento específico da doença foram medidos usando o Lung Information Needs Questionnaire (LINQ) e o Bristol COPD Knowledge Questionnaire (BCKQ). Após um período de 7 a 10 dias foi reaplicado o questionário LINQ por contato telefônico. Resultados: Foram avaliados 196 pacientes de ambos os sexos (51,5% do sexo feminino), média de idade de 69,4±8,9 anos, predominando na amostra o baixo nível de escolaridade (49,5% com ensino fundamental incompleto), a cor branca (44,9%), a classificação GOLD moderado (43,9%) e nenhuma exacerbação nos últimos 12 meses (58,7%). A média do escore CAT foi de 15,6±9,2 e a mediana do mMRC 2 (1-4). A pontuação média totaldo LINQ foi de 9,2 ± 2,9 e do Bristol 27,3 ± 6,6. Os domínios com maior necessidade de informações pelo LINQ foram “Medicações” e “Dieta”, e no conhecimento específico do Bristol as pontuações mais baixas foram “Broncodilatadores” e “Corticoides Inalatórios”, e os domínios “Exercícios”, “Sintomas” e “Etiologia” com as pontuações mais altas. A correlação de Spearman foi fraca (r=-0,21) entre LINQ e escolaridade e entre Bristol e escolaridade também foi fraca (r=0.08). Não houve correlação significante dos questionários com sexo, idade e tempo de acompanhamento do paciente no ambulatório. Houve concordância forte [Kappa (p>0,90)] e excelente [ICC (p>0,79)] entre as avaliações do LINQ presencial e por telefone. Conclusões: Nossos pacientes com DPOC diferem quando acreditavam que sabiam informações avaliados pelo LINQ e as informações reais que possuíam avaliadas pelo Bristol. Constatamos que a necessidade de conhecimento avaliado pelo questionário LINQ pode ser aplicado por telefone e em consultas iniciais de tratamento. O Bristol pode ser aplicado para verificar o conhecimento real do paciente para o desenvolvimento e avaliação de programas de educação em saúde e reabilitação pulmonar.
Objective: To assess knowledge about chronic obstructive pulmonary disease (COPD) and the need for information of patients with COPD and their correlations with education, sex, age and follow-up time. In addition to analyzing the agreement of LINQ responses in face-to-face and telephone modes. Methods: Individuals of both sexes, between 40 and 94 years old, diagnosed with COPD, consecutively, who were being followed up at the COPD Outpatient Clinic of the Escola Paulista de Medicina were selected. The volunteers underwent data collection regarding age, sex, race, education, spirometric values, COPD Assessment Test (CAT), modified Medical Research Council (mMRC), number of exacerbations and their severity. Disease-specific information and knowledge needs were measured using the Lung Information Needs Questionnaire (LINQ) and the Bristol COPD Knowledge Questionnaire (BCKQ). After a period of 7 to 10 days, the LINQ questionnaire was reapplied by telephone contact. Results: A total of 196 patients of both genders (51.5% female), mean age 69.4±8.9 years, predominating in the sample the low level of education (49.5% with incomplete primary education ), white color (44.9%), moderate GOLD classification (43.9%) and no exacerbation in the last 12 months (58.7%). The mean CAT score was 15.6±9.2 and the median mMRC 2 (1-4). The mean total score for the LINQ was 9.2 ± 2.9 and for the Bristol 27.3 ± 6.6. The domains with the greatest need for information by the LINQ were “Medications” and “Diet”, and in the specific knowledge of the Bristol the lowest scores were “Bronchodilators” and “Inhaled Corticosteroids”, and the domains “Exercises”, “Symptoms” and “ Etiology” with the highest scores. Spearman's correlation was weak (r=-0.21) between LINQ and education and between Bristol and education was also weak (r=0.08). There was no significant correlation between the questionnaires and the patient's gender, age and length of follow-up at the outpatient clinic. There was strong [Kappa (p>0.90)] and excellent [ICC (p>0.79)] agreement between faceto-face and telephone LINQ assessments. Conclusions: Our patients with COPD differ when they believe they know information assessed by the LINQ and the actual information they have assessed by the Bristol. We found that the need for knowledge assessed by the LINQ questionnaire can be applied over the telephone and in initial treatment consultations. The Bristol can be applied to verify the actual knowledge of the patient for the development and evaluation of education programs in health and pulmonary rehabilitation. Keywords: Knowledge, Chronic Obstructive Pulmonary Disease, Assessment questionnaire, LINQ, BRISTOL
Objective: To assess knowledge about chronic obstructive pulmonary disease (COPD) and the need for information of patients with COPD and their correlations with education, sex, age and follow-up time. In addition to analyzing the agreement of LINQ responses in face-to-face and telephone modes. Methods: Individuals of both sexes, between 40 and 94 years old, diagnosed with COPD, consecutively, who were being followed up at the COPD Outpatient Clinic of the Escola Paulista de Medicina were selected. The volunteers underwent data collection regarding age, sex, race, education, spirometric values, COPD Assessment Test (CAT), modified Medical Research Council (mMRC), number of exacerbations and their severity. Disease-specific information and knowledge needs were measured using the Lung Information Needs Questionnaire (LINQ) and the Bristol COPD Knowledge Questionnaire (BCKQ). After a period of 7 to 10 days, the LINQ questionnaire was reapplied by telephone contact. Results: A total of 196 patients of both genders (51.5% female), mean age 69.4±8.9 years, predominating in the sample the low level of education (49.5% with incomplete primary education ), white color (44.9%), moderate GOLD classification (43.9%) and no exacerbation in the last 12 months (58.7%). The mean CAT score was 15.6±9.2 and the median mMRC 2 (1-4). The mean total score for the LINQ was 9.2 ± 2.9 and for the Bristol 27.3 ± 6.6. The domains with the greatest need for information by the LINQ were “Medications” and “Diet”, and in the specific knowledge of the Bristol the lowest scores were “Bronchodilators” and “Inhaled Corticosteroids”, and the domains “Exercises”, “Symptoms” and “ Etiology” with the highest scores. Spearman's correlation was weak (r=-0.21) between LINQ and education and between Bristol and education was also weak (r=0.08). There was no significant correlation between the questionnaires and the patient's gender, age and length of follow-up at the outpatient clinic. There was strong [Kappa (p>0.90)] and excellent [ICC (p>0.79)] agreement between faceto-face and telephone LINQ assessments. Conclusions: Our patients with COPD differ when they believe they know information assessed by the LINQ and the actual information they have assessed by the Bristol. We found that the need for knowledge assessed by the LINQ questionnaire can be applied over the telephone and in initial treatment consultations. The Bristol can be applied to verify the actual knowledge of the patient for the development and evaluation of education programs in health and pulmonary rehabilitation. Keywords: Knowledge, Chronic Obstructive Pulmonary Disease, Assessment questionnaire, LINQ, BRISTOL
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Citação
NOHARA, Soraya Sayuri Braga. Pacientes com DPOC divergem na avaliação do conhecimento pelo Bristol e na necessidade de informações pelo LINQ. 2023. 79 f. Dissertação (Mestrado em Pneumologia) - Escola Paulista de Medicina, Universidade Federal de São Paulo (UNIFESP). São Paulo, 2023.