Centralized Coordination of Decentralized Assistance for Patients with Gestational Trophoblastic Disease in Brazil A Viable Strategy for Developing Countries

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dc.citation.volume61
dc.contributor.authorBraga, Antonio
dc.contributor.authorBurla, Marcelo
dc.contributor.authorFreitas, Fernanda
dc.contributor.authorUberti, Elza
dc.contributor.authorViggiano, Mauricio
dc.contributor.authorSun, Sue Yazaki [UNIFESP]
dc.contributor.authorMaesta, Izildinha
dc.contributor.authorElias, Kevin M.
dc.contributor.authorBerkowitz, Ross S.
dc.coverageSt Louis
dc.date.accessioned2020-07-22T13:22:57Z
dc.date.available2020-07-22T13:22:57Z
dc.date.issued2016
dc.description.abstractOBJECTIVE: To report on the Brazilian Association of Gestational Trophoblastic Disease's (GTD) formation of a network of regional care at specialized centers for women with GTD. STUDY DESIGN: We developed a questionnaire composed of 15 questions, which was sent by email to the 38 Brazilian GTD Reference Center (BGTDRC) Directors who are members of the Brazilian Association of GTD, in order to characterize the professionals involved in the care of patients with GTD and the type of assistance provided. RESULTS: The Directors of the BGTDRCs are usually specialists in Gynecology and Obstetrics (97%), with a median experience of a decade in treating women with GTD. The BGTDRCs are linked to university hospitals in 75% of centers and provide completely free medical care in 87%. However, 52% of centers do not perform chemotherapy in their reference center, and patients are referred elsewhere for chemotherapy. Despite some difficulties, the rate of patients lost to follow-up before human chorionic gonadotropin remission is 9%, and the GTD mortality rate is 0.9%. CONCLUSION: Due to large regional disparities, the BGTDRCs are not uniformly organized. However, under the coordination of the Brazilian Association of GTD there is now strong communication and collaboration among reference centers, which has significantly advanced both patient care and research into the management of these diseases.en
dc.description.affiliationUniv Fed Rio de Janeiro, Matern Sch, Rio de Janeiro Trophoblast Dis Ctr, Rio De Janeiro, Brazil
dc.description.affiliationAntonio Pedro Univ Hosp, Rio De Janeiro, Brazil
dc.description.affiliationUniv Fed Fluminense, Postgrad Program Med Sci, Rio De Janeiro, Brazil
dc.description.affiliationIrmandade Santa Casa Misericordia Hosp, Mario Totta Matern Ward, Porto Alegre Trophoblast Dis Ctr, Porto Alegre, RS, Brazil
dc.description.affiliationGoias Fed Univ, Clin Hosp, Fac Med, Goiania Trophoblast Dis Ctr, Goiania, Go, Brazil
dc.description.affiliationUniv Fed Sao Paulo, Sao Paulo Hosp, Paulista Sch Med, Sao Paulo Trophoblast Dis Ctr, Sao Paulo, Brazil
dc.description.affiliationSao Paulo State Univ, Clin Hosp, Botucatu Trophoblast Dis Ctr, Botucatu Med Sch, Sao Paulo, Brazil
dc.description.affiliationHarvard Univ, Brigham & Womens Hosp,New England Trophoblast Dis, Dana Farber Canc Inst,Sch Med,Trophoblast Tumor R, Div Gynecol Oncol,Dept Obstet & Gynecol,Harvard C, Boston, MA USA
dc.description.affiliationUnifespUniv Fed Sao Paulo, Sao Paulo Hosp, Paulista Sch Med, Sao Paulo Trophoblast Dis Ctr, Sao Paulo, Brazil
dc.description.sourceWeb of Science
dc.description.sponsorshipCarlos Chagas Filho Foundation for Research Support in the State of Rio de Janeiro, Brazil, an agency under the Brazilian Ministry of Science and Technology
dc.description.sponsorshipDonald P. Goldstein, M.D., Trophoblastic Tumor Registry Endowment
dc.description.sponsorshipDyett Family Trophoblastic Disease Research and Registry Endowment
dc.format.extent224-229
dc.identifier.citationJournal Of Reproductive Medicine. St Louis, v. 61, n. 43621, p. 224-229, 2016.
dc.identifier.issn0024-7758
dc.identifier.urihttps://repositorio.unifesp.br/handle/11600/55960
dc.identifier.wosWOS:000376228500010
dc.language.isoeng
dc.publisherSci Printers & Publ Inc
dc.relation.ispartofJournal Of Reproductive Medicine
dc.relation.ispartof18th World Congress on Gestational Trophoblastic Diseases
dc.rightsinfo:eu-repo/semantics/restrictedAccess
dc.subjectBrazilen
dc.subjectchemotherapyen
dc.subjectgestational trophoblastic diseaseen
dc.subjectgestational trophoblastic neoplasiaen
dc.subjecthydatidiform moleen
dc.subjectmolar pregnancyen
dc.titleCentralized Coordination of Decentralized Assistance for Patients with Gestational Trophoblastic Disease in Brazil A Viable Strategy for Developing Countriesen
dc.typeinfo:eu-repo/semantics/article
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