Navegando por Palavras-chave "self-care"

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    Children and adults with primary antibody deficiencies gain quality of life by subcutaneous IgG self-infusions at home
    (Mosby, Inc, 2004-10-01) Gardulf, Ann; Nicolay, Uwe; Asensio, Oscar; Bernatowska, Ewa; Bock, Andreas; Costa-Carvalho, Beatriz Tavares [UNIFESP]; Granert, Carl; Haag, Stefan; Hernandez, Dolores; Kiessling, Peter; Kus, Jan; Matamoros, Nuria; Niehues, Tim; Schmidt, Sigune; Schulze, Ilka; Borte, Michael; Karolinska Univ Hosp; Consorcio Hosp Parc Tauli; Childrens Mem Hlth Inst; Univ Vienna; Universidade Federal de São Paulo (UNIFESP); ZLB Behring GMBH; Hosp Univ La Fe; Natl Res Inst TB & Lung Dis; Hosp Univ Son Dureta; Univ Klinikum Dusseldorf; Univ Freiburg; Humboldt Univ; Univ Leipzig
    Background: A large number of children and adults with primary antibody deficiencies need lifelong IgG replacement therapy. It is mostly unknown what effect the choice of replacement therapy has on the patients' health-related quality of life (HRQOL) and treatment satisfaction (TS).Objective: To investigate whether a switch from hospital-based intravenous IgG (IVIG) to home-based subcutaneous IgG (SCIG) therapy would improve the HRQOL and TS.Methods: Fifteen children (<14 years; hospital-based IVIG therapy at enrollment) and 32 adults (greater than or equal to14 years; 22 on hospital-based IVIG and 10 on home-based SCIG therapy at enrollment) were included. Questionnaires were completed at baseline and at 6 and 10 months: the Child Health Questionnaire-Parental Form 50 (children) or Short Form 36 (adults), the Life Quality Index, and questions regarding therapy preferences.Results: the SCIG home therapy was reported to give better health (P = .001) and improved school/social functioning (P = .02) for the children, reduced emotional distress (P = .02) and limitations on personal time for the parents (P = .004), and fewer limitations on family activities (P = .002). Adults switching therapy reported improved vitality (P = .04), mental health (P = .05), and social functioning (P = .01). Adults already on SCIG home therapy at enrollment retained high HRQOL and TS scores. the SCIG home therapy improved TS because it led to greater independence and better therapy convenience (P <.05). the patients preferred the SCIG administration route and having the treatment at home.Conclusions: Home-based SCIG therapy improves several important aspects of HRQOL and provides the patients with primary antibody deficiencies and their families with greater independence and better control of the therapy situation and daily life. SCIG home therapy is an appreciated therapeutic alternative for adults and children in need of lifelong IgG replacement therapy.
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    Da estética da existência como resistência ao intolerável: por uma ontologia do sujeito
    (Universidade Federal de São Paulo (UNIFESP), 2016-03-28) Brandao, Ramon Taniguchi Piretti [UNIFESP]; Teixeira, Ana Lucia de Freitas [UNIFESP]; Universidade Federal de São Paulo (UNIFESP)
    The present research studies the question of ontology of the subject, which marks the thought of Michel Foucault. In this context, we investigate the ways in which the individual, since antiquity, it is recognized as a subject of its own shares. This constitution, as we shall see, takes place from a relationship, that the individual establishes himself (ethical relation) and historical events in the context of knowing the power characteristic of his time. On the other side, we will see that crystallized thought patterns always leave space for the exercise of a transgressive resistance, experience of struggle where the individual creates new possibilities of life. The author tells us that the individual?s subjective process, taking an ethical position, walks toward the aesthetics of existence, possible freedom in existence. In other words, the subject of experience is organized from a principle of transformation, a form of action which he conceives in becoming, being the node of multiple relationships and not from an identity principle, where it presupposes unit.
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    Ineffective Health Management in People With Heart Failure: A Pilot Study
    (Wiley, 2018) Carneiro, Camila de Souza; Lopes, Camila Takao [UNIFESP]; Lopes, Juliana de Lima [UNIFESP]; Santos, Vinicius Batista [UNIFESP]; Bachion, Maria Marcia; Bottura Leite de Barros, Alba Lucia [UNIFESP]
    OBJETIVO: Investigar a aplicabilidade clínica das definiçõs conceituais e operacionais das características definidoras (CD) e fatores relacionados (FR) de Controle ineficaz da saúde em pessoas com insuficiência cardíaca. MÉTHODS: Estudo piloto transversal. A presença das CD e FRfoi investigada com base nas definiçõses conceituais e operacionais. As frequênciasforam utilizadas para análise. RESULTADOS: Dos 33 participantes, 32 (97%) tinham Controle ineficaz da saúde.A principal CD foi Escolhas na vida diária ineficazes para atingir as meta de saúde, e oprincipal FR foi Impotência. CONCLUSÂO: As definições conceituais e operacionais foram aplicáveis à prática clínica, com exceçâo de Benefício percebido, Suscetibilidade percebida e Gravidade da condiçâo percebida, as quais devem ser modificadas.