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- ItemAcesso aberto (Open Access)Desempenho de pais de crianças em dieta de exclusão do leite de vaca na identificação de alimentos industrializados com e sem leite vaca(Sociedade Brasileira de Pediatria, 2007-10-01) Weber, Thabata Koester [UNIFESP]; Speridião, Patrícia da Graça Leite [UNIFESP]; Sdepanian, Vera Lucia [UNIFESP]; Fagundes Neto, Ulysses [UNIFESP]; Morais, Mauro Batista de [UNIFESP]; Universidade Federal de São Paulo (UNIFESP)OBJECTIVE: To investigate how well the parents of children on cow's milk free diets perform at recognizing whether or not expressions describe and foods contain cow's milk proteins. METHODS: Interviews were conducted with 24 parents of children on cow's milk and by-products exclusion diets and 23 parents of children with no need for any type of exclusion diet. They were asked if they recognized 12 expressions relating to cow's milk. They were then asked to classify 10 commercial food products in terms of whether or not they contained cow's milk proteins. RESULTS: Terms that included the word milk were more often recognized by both groups of parents. The parents of children on exclusion diets recognized the terms cow's milk protein, traces of milk and milk formulation or preparation most frequently (p < 0.05). Less than 25.0% of those interviewed recognized casein, caseinate, lactalbumin and lactoglobulin. Both groups correctly identified more of the commercial products containing cow's milk than those free from milk. The median number of products containing cow's milk (total = 5) correctly identified by the parents of children on exclusion diets (4.0) was greater than for the control group (3.0; p = 0.005). Reading at least one label was associated with a greater chance of correctly identifying more than five of the 10 products (odds ratio = 8.0). CONCLUSIONS: Despite having received guidance, the parents of children on exclusion diets were not fully prepared to manage these diets, indicating a need for improvements to the instruction provided when indicating exclusion diets.
- ItemSomente MetadadadosGrupos psicoeducacionais para pais de crianças e adolescentes com transtorno do espectro do autismo: revisão de literatura e modelo-piloto(Universidade Federal de São Paulo (UNIFESP), 2015-09-30) Cavalcante, Thais Graziela Francisco [UNIFESP]; Araujo Filho, Gerardo Maria de Araujo Filho [UNIFESP]; Universidade Federal de São Paulo (UNIFESP)We aimed to conduct a systematic review of the types of psychoeducational intervention programs for parents of children with Autism Spectrum Disorder (ASD); develop a pilot model of psychoeducational intervention for parents of children with ASD, testing its effectiveness in inducing changes in knowledge, attitudes and practices, reflecting in parental self-efficacy and caregiver burden. Methods: This study was divided into two phases: 1) conducting a systematic review, covering articles published about psychoeducation groups for parents of autistic children and adolescents, including three databases and following very specific criteria. 2) the development of an interventional program and a pilot study with parents of children and adolescents with ASD, using meetings in group format for intervention. Information were collected through two standard scales, a sociodemographic record and its own questionnaire developed specifically for this study. Results: Only 12 indexed articles met all the criteria inclusion for this review. All selected articles showed that psychoeducation programs for parents direct or indirectly reflected in good results in reduction of stress, increased confidence and positive changes in family dynamics. As the results of the pilot model, we found that self-efficacy of parents increased substantially on 20% after the psychoeducational intervention. Decreases related to the caregiver burden index, showed little significant reduction as a group, only 2%. The parents had their burden levels named in moderate to 28.5% of participants and moderate to severe for the other 71.5%. The maximum score for the first implementation of the inventory was 57 and at the last measurement time was 55 . Analyzing the data concerning the assessment of changes in knowledge, attitudes and practices, it revealed that comparing knowledge before and after the intervention, there was a 28% increase over the relevant information of TEA. Attitudes increased by 06% compared to the first assessment point, showing that there have been changes in parents' feelings related to both the disorder and their children. However, the practice did not show significant changes when comparing both time points. Conclusions: The findings of the pilot model agreed entirely with the literature findings, showing an improvement of self parenting efficacy and parental knowledge about the disorder of their children, as well as a change in criticism at each other and on their lives, possibly signaling a restructuring movement of their attitudes and practices. Replication of psychoeducational model developed in this study with a larger number of participants would allow a better investigation of findings.
- ItemAcesso aberto (Open Access)As informações recebidas pelos pais durante a hospitalização do filho(Escola de Enfermagem de Ribeirão Preto / Universidade de São Paulo, 2005-12-01) Sabatés, Ana Llonch; Borba, Regina Issuzu Hirooka de [UNIFESP]; Universidade Guarulhos; Universidade Federal de São Paulo (UNIFESP)This study aimed to find out how parents perceive the information they received from nurses during the hospital stay of their children and identify what information nurses indicate they supply to the parents. We carried out a descriptive-exploratory study with a quantitative approach at the pediatric internment units of a teaching hospital in the city of São Paulo, interviewing 50 parents whose children were hospitalized and 12 nurses working at these units. The results showed that parents were not completely satisfied with the information received from the nurses during the children's stay in hospital. The nurses mainly provided information to the parents about rules and routines, rights and obligations, reasons for procedures and parents' participation in care for the child. Parents asked the nurses information about the duration of their child`s hospitalization, progression of the disease, medication and treatment.
- ItemAcesso aberto (Open Access)Os pacientes invisíveis: transtorno de estresse pós-traumático em pais de pacientes com fibrose cística(Faculdade de Medicina da Universidade de São Paulo, 2010-01-01) Cabizuca, Mariana; Mendlowicz, Mauro; Marques-Portella, Carla; Ragoni, Celina; Coutinho, Evandro Silva Freire; Souza, Wanderson de; Mari, Jair de Jesus [UNIFESP]; Figueira, Ivan; Universidade Federal do Rio de Janeiro Instituto de Psiquiatria; Universidade Federal Fluminense Departamento de Psiquiatria e Saúde Mental; Fundação Oswaldo Cruz Escola Nacional de Saúde Pública; Universidade Federal de São Paulo (UNIFESP)BACKGROUND: Besides the growing acknowledgment of the relevance of posttraumatic stress disorder (PTSD) related to medical illness, there is no study in cystic fibrosis yet. OBJECTIVE: To assess the prevalence of PTSD and the three clusters of posttraumatic stress symptoms (PTSS) in parents of patients with cystic fibrosis. METHODS: Parents of patients with cystic fibrosis (age range: 2 to 33 years) were drawn from the Cystic Fibrosis Association of the city of Rio de Janeiro. In this cross-sectional study, parents were asked to fulfill a questionnaire for social and demographic characteristics and were interviewed by means of the PTSD module of the Structured Clinical Interview for DSM-IV. RESULTS: The sample comprised 62 subjects (46 mothers and 16 fathers). Current prevalence for full PTSD was 6.5% and that for partial PTSD was 19.4%. Parents with and without PTSS differed significantly in two psychosocial aspects: the former reported more emotional problems (p = 0.001); and acknowledged more often the need for psychological or psychiatric interventions (p = 0.002) than the latter. However, only 6.3% of the parents with PTSS were in psychological/psychiatric treatment. DISCUSSION: This preliminary study showed that the frequency of PTSD symptoms is fairly high among parents of patients with cystic fibrosis, and although these parents recognize they have emotional problems and need psychological/psychiatric treatment, their suffering remains invisible to the medical system, leading to underdiagnosis and undertreatment.
- ItemAcesso aberto (Open Access)Por que a maioria dos pais e alunos defende a reprovação?(Fundação Carlos Chagas, 2010-12-01) Jacomini, Márcia Aparecida [UNIFESP]; Universidade Federal de São Paulo (UNIFESP)This paper analyses the opinions of parents and students on social promotion by learning cycles. The field research was conducted in two public school in São Paulo City for a whole school year. Date were collected through observation of everyday school life and from semi-structured interviews with 56 parents and students, and organized into thematic categories, according to Bardin (2004). There were two central questions behind the research: Why are most parents and students against social promotion? How did they reach this way of thinking? The belief that retention exerts a healthy pressure on the students is a general assumption among them. So, for the subjects interviewed, pupils would felt obliged to study more, to behave well and to dedicate themselves to their studies. As the subject's school experiences do not confirm the positive effects of school repetition, they were asked why they continue thinking in this way. Their statements suggest that they have appropriated the dominant discourse, which is against the social promotion policies, without thinking critically about their own school experiences.