Critical, issues and needs in management of primary immunodeficiency diseases in Latin America

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dc.contributor.authorCondino-Neto, A.
dc.contributor.authorFranco, J. L.
dc.contributor.authorTrujillo-Vargas, C.
dc.contributor.authorEspinosa-Rosales, F. J.
dc.contributor.authorLeiva, L. E.
dc.contributor.authorRodriguez-Quiroz, F.
dc.contributor.authorKing, A.
dc.contributor.authorLagos, M.
dc.contributor.authorOleastro, M.
dc.contributor.authorBezrodnik, L.
dc.contributor.authorGrumach, A. S.
dc.contributor.authorCosta-Carvalho, B. T. [UNIFESP]
dc.contributor.authorSorensen, R. U.
dc.contributor.institutionUniversidade de São Paulo (USP)
dc.contributor.institutionUniv Antioquia
dc.contributor.institutionInst Nacl Pediat
dc.contributor.institutionLSU Hlth Sci Ctr
dc.contributor.institutionHosp Especialidades Ctr Med La Raza
dc.contributor.institutionHosp Ninos Luis Calvo Mackenna
dc.contributor.institutionUniv Valparaiso
dc.contributor.institutionHosp Nacl Pediat Prof Dr Juan P Garrahan
dc.contributor.institutionHosp Ninos Dr Ricardo Gutierrez
dc.contributor.institutionUniversidade Federal de São Paulo (UNIFESP)
dc.date.accessioned2016-01-24T14:05:58Z
dc.date.available2016-01-24T14:05:58Z
dc.date.issued2011-01-01
dc.description.abstractExperts from six Latin American countries met to discuss critical issues and needs in the diagnosis and management of primary immunodeficiency diseases (PIDD). the diagnosis of PIDD is generally made following referral to an immunology centre located in a major city, but many paediatricians and general practitioners are not sufficiently trained to suspect PIDD in the first place. Access to laboratory testing is generally limited, and only some screening tests are typically covered by government health programmes. Specialised diagnostic tests are generally not reimbursed. Access to treatment varies by country reflecting differences in healthcare systems and reimbursement policies. An online PIDD Registry Programme for Latin America has been available since 2009, which will provide information about PIDD epidemiology in the region. Additional collaboration across countries appears feasible in at least two areas: a laboratory network to facilitate the diagnosis of PIDD, and educational programmes to improve PIDD awareness. in total, these collaborations should make it possible to advance the diagnosis and management of PIDD in Latin America. (C) 2010 SEICAP. Published by Elsevier Espana, S.L. All rights reserved.en
dc.description.affiliationUniv São Paulo, Dept Immunol, Inst Biomed Sci, São Paulo, Brazil
dc.description.affiliationUniv Antioquia, Grp Primary Immunodeficiencies, Sch Med, Medellin, Colombia
dc.description.affiliationInst Nacl Pediat, Mexico City, DF, Mexico
dc.description.affiliationLSU Hlth Sci Ctr, Dept Pediat, New Orleans, LA USA
dc.description.affiliationHosp Especialidades Ctr Med La Raza, Inst Hondureno Seguridad Social, Tegucigalpa, Honduras
dc.description.affiliationHosp Ninos Luis Calvo Mackenna, Immunol Unit, Santiago, Chile
dc.description.affiliationUniv Valparaiso, Escuela Med, Unidad Immunol, Valparaiso, Chile
dc.description.affiliationHosp Nacl Pediat Prof Dr Juan P Garrahan, Buenos Aires, DF, Argentina
dc.description.affiliationHosp Ninos Dr Ricardo Gutierrez, Buenos Aires, DF, Argentina
dc.description.affiliationUniv São Paulo, Primary Immunodeficiency Outpatient Grp, Dept Dermatol, São Paulo, Brazil
dc.description.affiliationFed Univ São Paulo UNIFESP EPM, Dept Pediat, São Paulo, Brazil
dc.description.affiliationUnifespFed Univ São Paulo UNIFESP EPM, Dept Pediat, São Paulo, Brazil
dc.description.sourceWeb of Science
dc.description.sponsorshipBaxter
dc.description.sponsorshipBaxter Biosciences
dc.format.extent45-51
dc.identifierhttp://dx.doi.org/10.1016/j.aller.2010.09.001
dc.identifier.citationAllergologia Et Immunopathologia. Barcelona: Elsevier Doyma Sl, v. 39, n. 1, p. 45-51, 2011.
dc.identifier.doi10.1016/j.aller.2010.09.001
dc.identifier.issn0301-0546
dc.identifier.urihttp://repositorio.unifesp.br/handle/11600/33272
dc.identifier.wosWOS:000287296100009
dc.language.isoeng
dc.publisherElsevier B.V.
dc.relation.ispartofAllergologia Et Immunopathologia
dc.rightsinfo:eu-repo/semantics/restrictedAccess
dc.rights.licensehttp://www.elsevier.com/about/open-access/open-access-policies/article-posting-policy
dc.subjectDiagnosisen
dc.subjectEducationen
dc.subjectLatin Americaen
dc.subjectPrimary immunodeficiency diseasesen
dc.subjectRegistryen
dc.subjectTreatmenten
dc.titleCritical, issues and needs in management of primary immunodeficiency diseases in Latin Americaen
dc.typeinfo:eu-repo/semantics/article
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