Laços de Sangue: saberes e experiências sobre a hemofilia a partir de histórias de vida

Abstract

O processo historico de formacao da Medicina cientifica deu origem a transformacoes das relacoes medico-paciente que se caracterizaram pela desvalorizacao das experiencias de vida e identidades dos doentes. O doente passou a ser um objeto e o foco da atencao medica centrou-se na doenca. O objetivo principal de nossa pesquisa foi avaliar o potencial das narrativas transcriadas resultantes de projetos de historia oral de vida como recurso pedagogico em processos educacionais que visem a humanizacao em Saúde. Para isso realizamos uma pesquisa de historia oral de vida com hemofilicos, familiares e medicos da unidade de hemofilia do Hospital Brigadeiro de São Paulo. Apos os processos de gravacao, transcricao e transcriacao das narrativas de nossos colaboradores, realizamos uma discussao das identidades coletivas e das formas subjetivas de lidar com questoes coletivas apresentadas nas narrativas. Discutimos tambem as os conflitos entre medicos e pacientes narrados pelos colaboradores e as posturas frente a relacao medico-paciente apresentadas nas narrativas de nossos colaboradores medicos. Por fim, concluimos que as transcriacoes resultantes de pesquisas de historia oral de vida tem potencial para serem utilizadas como recurso pedagogicos em processos educacionais que visem a humanizacao da relacao medico-paciente, pois elas resgatam questoes desvalorizadas pelo modelo biomedico de assistencia a Saúde: experiencias de vida, identidades coletivas de minorias e demandas subjetivas do processo Saúde-doenca e da relacao medico-paciente

The history of the development of scientific medicine has led to changes of thedoctor-patient relationships that are characterized by the devaluation of life experiences and identities of patients. The patient became an object and focus ofmedical attention focused on the disease. The main objective of our research was to evaluate the potential of narrative transcriadas resulting from oral history projectsof life as a teaching tool in educational processes aimed at the humanization of health. To do this we conducted a survey of oral history of life with hemophilia, their families and doctors of haemophilia unit of Hospital São Paulo Brig. After recording processes, transcription and transcreation the narratives of our employees, we conducted a discussion of collective identities and subjective ways of dealing withcollective issues presented in the narrative. We also discuss the conflicts betweendoctors and patients narrated by employees and postures against the doctor-patient relationship presented in the narratives of our staff physicians. Finally, we concludethat the resulting research transcreations oral history of life have the potential to beused as a teaching resource in the educational process aimed at the humanizationof the doctor-patient relationship, as they rescue issues devalued by the biomedical model of health care: experiences of life, collective identities of minorities andsubjective demands of the health-disease and the doctor-patient relationship.