Navegando por Palavras-chave "Primary immunodeficiency diseases"

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    Critical, issues and needs in management of primary immunodeficiency diseases in Latin America
    (Elsevier B.V., 2011-01-01) Condino-Neto, A.; Franco, J. L.; Trujillo-Vargas, C.; Espinosa-Rosales, F. J.; Leiva, L. E.; Rodriguez-Quiroz, F.; King, A.; Lagos, M.; Oleastro, M.; Bezrodnik, L.; Grumach, A. S.; Costa-Carvalho, B. T. [UNIFESP]; Sorensen, R. U.; Universidade de São Paulo (USP); Univ Antioquia; Inst Nacl Pediat; LSU Hlth Sci Ctr; Hosp Especialidades Ctr Med La Raza; Hosp Ninos Luis Calvo Mackenna; Univ Valparaiso; Hosp Nacl Pediat Prof Dr Juan P Garrahan; Hosp Ninos Dr Ricardo Gutierrez; Universidade Federal de São Paulo (UNIFESP)
    Experts from six Latin American countries met to discuss critical issues and needs in the diagnosis and management of primary immunodeficiency diseases (PIDD). the diagnosis of PIDD is generally made following referral to an immunology centre located in a major city, but many paediatricians and general practitioners are not sufficiently trained to suspect PIDD in the first place. Access to laboratory testing is generally limited, and only some screening tests are typically covered by government health programmes. Specialised diagnostic tests are generally not reimbursed. Access to treatment varies by country reflecting differences in healthcare systems and reimbursement policies. An online PIDD Registry Programme for Latin America has been available since 2009, which will provide information about PIDD epidemiology in the region. Additional collaboration across countries appears feasible in at least two areas: a laboratory network to facilitate the diagnosis of PIDD, and educational programmes to improve PIDD awareness. in total, these collaborations should make it possible to advance the diagnosis and management of PIDD in Latin America. (C) 2010 SEICAP. Published by Elsevier Espana, S.L. All rights reserved.
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    Primary immunodeficiency diseases in Latin America: Proceedings of the Second Latin American Society for Immunodeficiencies (LASID) Advisory Board
    (Elsevier B.V., 2011-03-01) Leiva, L. E.; Bezrodnik, L.; Oleastro, M.; Condino-Neto, A.; Costa-Carvalho, B. T. [UNIFESP]; Sevciovic Grumach, A.; Espinosa-Rosales, F. J.; Luis Franco, J.; King, A.; Inostroza, J.; Quezada, A.; Porras, O.; Sorensen, R. U.; Universidade de São Paulo (USP); LSU Hlth Sci Ctr; Hosp Ninos Dr Ricardo Gutierrez; Hosp Nacl Pediat Prof Dr Juan P Garrahan; Universidade Federal de São Paulo (UNIFESP); Fac Med ABC; Ctr Dis Control Immunizat; Inst Nacl Pediat; Univ Antioquia; Hosp Ninos Luis Calvo Mackenna; Univ La Frontera; Hosp E Gonzalez Cortes; Hosp Nacl Ninos Dr Carlos Saenz Herrera
    Early diagnosis and appropriate therapy are essential for the best prognosis and quality of life in patients with primary immunodeficiency diseases (PIDDs). Experts from several Latin American countries have been meeting on a regular basis as part of an ongoing effort to improve the diagnosis and treatment of PIDD in this region. Three programmes are in development that will expand education and training and improve access to testing facilities throughout Latin America. These programmes are: an educational outreach programme (The L-Project); an immunology fellowship programme; and the establishment of a laboratory network to expand access to testing facilities. This report provides the status of these programmes based on the most recent discussions and describes the next steps toward full implementation of these programmes. (C) 2010 SEICAP. Published by Elsevier Espana, S.L. All rights reserved.