Navegando por Palavras-chave "Transplante De Células- Tronco Hematopoiéticas"

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    Construção E Validação Do Software Tmo-App Para Uso Por Família De Criança/Adolescente Com Câncer Submetido Ao Transplante De Celúlas-Tronco Hematopoiéticas
    (Universidade Federal de São Paulo (UNIFESP), 2017-05-30) Duarte, Adriana Maria [UNIFESP]; Pettengill, Myriam Aparecida Mandetta [UNIFESP]; Universidade Federal de São Paulo (UNIFESP)
    Objective: To construct and validate an informative mobile application for families of children or adolescents with cancer who are undergoing hematopoietic stem cell transplantation (HSCT). Method: The Patient- and Family-Centered Care Model and User-Centered Design constituted the theoretical framework of this methodological study. Three principles guided the development of the application: (1) a focus on users and their tasks: to this end, three studies were conducted, including an integrative review of the literature, a qualitative field study to identify the family’s needs for information, and a bibliographical study to support the information conveyed by the application; (2) measurement of usability: a prototype was initially developed, followed by content validation, which engaged experts in the Delphi technique and the target population, using a focal group approach, and finally a usability evaluation conducted by information technology specialists, using Nielsen heuristics; (3) interactive testing of the application by users: a qualitative case study was conducted to evaluate usability from the family perspective. The studies complied with ethical principles guiding research with humans. Results: The family’s information needs identified were grouped into three thematic categories: accessing information from reliable sources; holding knowledge on HSCT; and being embraced by the healthcare staff. Information needs were taken into account to develop the prototype, subsequently validated by specialists, with over 80% agreement, and by end users, who endorsed the application’s potential to mitigate the suffering experienced by family members. Because usability severity was rated by experts as simple, the application was given a final version and interactively tested with a family, whose members subsequently acknowledged feeling strengthened by the information thus acquired, which enabled them to cope with the experience of having a child undergoing HSCT. Conclusions: The study provides advancement in proposing new informative strategies for family empowerment in situations of chronic illness. Evidence was also provided on the recognition of user needs as essential to the design and implementation of new technologies. This study will find utility in future investigations focused on the development of mobile applications.