Practices and ethical concerns regarding preimplantation diagnosis. Who regulates preimplantation genetic diagnosis in Brazil?

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dc.contributor.author Damian, B.b.
dc.contributor.author Bonetti, Tatiana Carvalho de Souza [UNIFESP]
dc.contributor.author Horovitz, Dafne Dain Gandelman
dc.date.accessioned 2015-06-14T13:47:29Z
dc.date.available 2015-06-14T13:47:29Z
dc.date.issued 2015-01-01
dc.identifier http://dx.doi.org/10.1590/1414-431X20144083
dc.identifier.citation Brazilian Journal of Medical and Biological Research. Associação Brasileira de Divulgação Científica, v. 48, n. 1, p. 25-33, 2015.
dc.identifier.issn 0100-879X
dc.identifier.uri http://repositorio.unifesp.br/handle/11600/8777
dc.description.abstract Preimplantation genetic diagnosis (PGD) was originally developed to diagnose embryo-related genetic abnormalities for couples who present a high risk of a specific inherited disorder. Because this technology involves embryo selection, the medical, bioethical, and legal implications of the technique have been debated, particularly when it is used to select features that are not related to serious diseases. Although several initiatives have attempted to achieve regulatory harmonization, the diversity of healthcare services available and the presence of cultural differences have hampered attempts to achieve this goal. Thus, in different countries, the provision of PGD and regulatory frameworks reflect the perceptions of scientific groups, legislators, and society regarding this technology. In Brazil, several texts have been analyzed by the National Congress to regulate the use of assisted reproduction technologies. Legislative debates, however, are not conclusive, and limited information has been published on how PGD is specifically regulated. The country requires the development of new regulatory standards to ensure adequate access to this technology and to guarantee its safe practice. This study examined official documents published on PGD regulation in Brazil and demonstrated how little direct oversight of PGD currently exists. It provides relevant information to encourage reflection on a particular regulation model in a Brazilian context, and should serve as part of the basis to enable further reform of the clinical practice of PGD in the country. en
dc.format.extent 25-33
dc.language.iso eng
dc.publisher Associação Brasileira de Divulgação Científica
dc.relation.ispartof Brazilian Journal of Medical and Biological Research
dc.rights Acesso aberto
dc.subject Preimplantation genetic diagnosis en
dc.subject Public policy en
dc.subject Regulation en
dc.subject Ethics en
dc.subject Brazil en
dc.title Practices and ethical concerns regarding preimplantation diagnosis. Who regulates preimplantation genetic diagnosis in Brazil? en
dc.type Artigo
dc.contributor.institution Fundação Oswaldo Cruz da Criança e do Adolescente Fernandes Figueira Instituto Nacional de Saúde da Mulher
dc.contributor.institution Universidade Federal de São Paulo (UNIFESP)
dc.description.affiliation Fundação Oswaldo Cruz da Criança e do Adolescente Fernandes Figueira Instituto Nacional de Saúde da Mulher
dc.description.affiliation Universidade Federal de São Paulo (UNIFESP) Departamento de Ginecologia
dc.description.affiliationUnifesp UNIFESP, Depto. de Ginecologia
dc.identifier.file S0100-879X2015000100025.pdf
dc.identifier.scielo S0100-879X2015000100025
dc.identifier.doi 10.1590/1414-431X20144083
dc.description.source SciELO



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