Barriers to early identification of autism in Brazil

Barriers to early identification of autism in Brazil

Author Ribeiro, Sabrina H. Autor UNIFESP Google Scholar
de Paula, Cristiane S. Autor UNIFESP Google Scholar
Bordini, Daniela Autor UNIFESP Google Scholar
Mari, Jair J. Autor UNIFESP Google Scholar
Caetano, Sheila C. Autor UNIFESP Google Scholar
Abstract Objective: Parents of children with autism spectrum disorders (ASD) seem to perceive that their child's development is not following the normal pattern as early as the first year of life. However, ASD children may not receive a diagnosis until they are of preschool age, especially in low- and middle-income countries. The objective of this study was to evaluate the pathway between initial parental concerns about atypical child development and ASD diagnosis in Brazil. Methods: Nineteen mothers whose children had been diagnosed with ASD participated and were interviewed. The ASD group consisted of two girls and 17 boys, with a mean age of 93.0 months (SD 48.4 months

range 39-197 months). Results: Mothers had their first concerns regarding ASD when children were 23.6 +/- 11.6 months old, but formal diagnosis occurred at a mean +/- SD age of 59.6 +/- 40.5 months, corresponding to a 3-year delay. Most mothers felt discouraged to address their concerns due to negative experiences with health professionals. Conclusion: In Brazil, mothers perceived the first signs of ASD in their children at an age similar to that reported in other countries, but the diagnosis of ASD seemed to be delayed. Consistent with the literature, mothers reported negative experiences with health professionals during the pathway to achieving ASD diagnosis.
Keywords Autism spectrum disorder
parental identification
delayed diagnosis
low-and middle-income countries
xmlui.dri2xhtml.METS-1.0.item-coverage Sao Paulo
Language English
Sponsor Coordenacao de Aperfeicoamento de Pessoal de Nivel Superior (CAPES)
Date 2017
Published in Revista Brasileira De Psiquiatria. Sao Paulo, v. 39, n. 4, p. 352-354, 2017.
ISSN 1516-4446 (Sherpa/Romeo, impact factor)
Publisher Assoc Brasileira Psiquiatria
Extent 352-354
Origin http://dx.doi.org/10.1590/1516-4446-2016-2141
Access rights Open access Open Access
Type Article
Web of Science ID WOS:000415387500014
SciELO ID S1516-44462017000400352 (statistics in SciELO)
URI https://repositorio.unifesp.br/handle/11600/57228

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