Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF)

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dc.contributor.author Miyamoto, Samira Tatiyama [UNIFESP]
dc.contributor.author Paganotti, Mauricio Aquino
dc.contributor.author Serrano, Erica Vieira
dc.contributor.author Giovelli, Raquel Altoé
dc.contributor.author Valim, Valeria [UNIFESP]
dc.date.accessioned 2016-01-24T14:40:06Z
dc.date.available 2016-01-24T14:40:06Z
dc.date.issued 2015-03-01
dc.identifier http://dx.doi.org/10.1016/j.rbr.2014.10.002
dc.identifier.citation Revista Brasileira de Reumatologia. New York: Elsevier B.V., v. 55, n. 2, p. 113-122, 2015.
dc.identifier.issn 0482-5004
dc.identifier.uri http://repositorio.unifesp.br/handle/11600/38787
dc.description.abstract Objective: To perform a cross-cultural adaptation and validation of the Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) questionnaire assessing the subjective aspects of the symptoms of primary Sjogren syndrome (pSS), for the Brazilian Portuguese language.Method: Conceptual, of the item, semantic and operational equivalences were evaluated. the Brazilian version of PROFAD-SSI-SF was administered to 62 women with pSS according to the European-American consensus 2002 to assess measurement equivalence. alpha-Cronbach was used for internal consistency; intraclass correlation coefficient (ICC) for intraobserver reproducibility; and Spearman correlation coefficient for validity by comparing with Patient Global Assessment (PaGA), EULAR Sjogren's Syndrome Patient Reported Index (ESSPRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (FACIT-F) and EuroQOL (EQ-5D).Results: the internal consistency of PROFAD, SSI and total score was 0.80; 0.78; and 0.87, respectively. the intraobserver reproducibility of total PROFAD was 0.89; of total SSI of 0.86; and total score of 0.89. in terms of validity, PROFAD correlated significantly with PaGA (r = 0.50), FACIT-F (r = 0.59), ESSPRI (r = 0.58) and all domains of EQ-5D, with the exception of Mobility. On the other hand, SSI correlated significantly with PaGA (r = 0.43), FACIT-F (r = 0.57), ESSPRI (r = 0.55) and most areas of EQ-5D. the total score of PROFAD-SSI-SF had a non-statistically significant correlation only with Mobility domain and with 1-100 range of EQ-5D.Conclusion: the Portuguese version of PROFAD-SSI-SF proved to be an adaptable, reproducible and valid tool for the Brazilian Portuguese language. (C) 2014 Elsevier Editora Ltda. All rights reserved. en
dc.description.abstract Objetivo: Fazer a adaptação transcultural e a validação do Profile of Fatigue and Discomfort – Sicca Symptoms Inventory (short form) (Profad-SSI-SF), questionário que avalia os aspectos subjetivos dos sintomas da síndrome de Sjögren primária (SSp), para a língua portuguesa brasileira. Método: Foi avaliada a equivalência conceitual, de item, semântica e operacional. A versão brasileira do Profad-SSI-SF foi aplicada a 62 mulheres com SSp conforme consenso europeu-americano de 2002 para avaliar a equivalência de mensuração. Foi usado o α-Cronbach para consistência interna; coeficiente de correlação intraclasse (ICC) para reprodutibilidade intraobservador; e coeficiente de correlação de Spearman para validade em comparação com o Patient Global Assessment (PaGA), Eular Sjögren’s Syndrome Patient Reported Index (ESS-PRI), Functional Assessment of Chronic Illness Therapy Fatigue Subscale (Facit-F) e EuroQOL(EQ-5D). Resultados: A consistência interna do Profad, do SSI e da pontuação total foi de 0,80, 0,78 e 0,87, respectivamente. A reprodutibilidade intraobservador do Profad total foi de 0,89; do SSI total de 0,86 e da pontuação total de 0,89. Na validade, o Profad apresentou correlação significativa com o PaGA (r = 0,50), Facit-F (r = 0,59), Esspri (r = 0,58) e todos os domínios do EQ-5D, com exceção da mobilidade. Já o SSI apresentou correlação significativa com o PaGA (r = 0,43), Facit-F (r = 0,57), Esspri (r = 0,55) e a maioria dos domínios do EQ-5D. A pontuação total do Profad-SSI-SF só não obteve correlação estatisticamente significante com o domínio mobilidade e escala 1 a 100 do EQ-D5. pt
dc.format.extent 113-122
dc.language.iso por
dc.language.iso eng
dc.publisher Elsevier B.V.
dc.relation.ispartof Revista Brasileira de Reumatologia
dc.rights Acesso aberto
dc.subject Sjogren's syndrome en
dc.subject Questionnaire en
dc.subject Validation study en
dc.subject Evaluation en
dc.subject PROFAD-SSI-SF en
dc.subject Síndrome de Sjögren pt
dc.subject Questionário pt
dc.subject Estudo de validação pt
dc.subject Avaliação pt
dc.subject Profad-SSI-SF pt
dc.title Assessment of fatigue and dryness in primary Sjogren's syndrome: Brazilian version of Profile of Fatigue and Discomfort - Sicca Symptoms Inventory (short form) (PROFAD-SSI-SF) en
dc.title.alternative Avaliação da fadiga e da secura na síndrome de Sjögren primária: versão brasileira do “Profile of Fatigue and Discomfort – Sicca Symptoms Inventory (short form) (Profad-SSI-SF)” pt
dc.type Artigo
dc.rights.license http://www.elsevier.com/about/open-access/open-access-policies/article-posting-policy
dc.contributor.institution Universidade Federal de São Paulo (UNIFESP)
dc.contributor.institution Univ Fed Espirito Santo
dc.contributor.institution Univ Vila Velha
dc.contributor.institution Escola Super Ciencias
dc.description.affiliation Universidade Federal de São Paulo, Escola Paulista Med, São Paulo, SP, Brazil
dc.description.affiliation Univ Fed Espirito Santo, Vitoria, ES, Brazil
dc.description.affiliation Univ Vila Velha, Vila Velha, ES, Brazil
dc.description.affiliation Escola Super Ciencias, Vitoria, ES, Brazil
dc.description.affiliationUnifesp Universidade Federal de São Paulo, Escola Paulista Med, São Paulo, SP, Brazil
dc.identifier.file S0482-50042015000200113-en.pdf
dc.identifier.file S0482-50042015000200113-pt.pdf
dc.identifier.scielo S0482-50042015000200113
dc.identifier.doi 10.1016/j.rbr.2014.10.002
dc.description.source Web of Science
dc.identifier.wos WOS:000352510000003



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