Quality of life and impact of the disease on primary caregivers of juvenile idiopathic arthritis patients

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dc.contributor.author Bruns, Alessandra [UNIFESP]
dc.contributor.author Esteves Hilario, Maria Odete [UNIFESP]
dc.contributor.author Jennings, Fabio [UNIFESP]
dc.contributor.author Silva, Clovis Artur
dc.contributor.author Natour, Jamil [UNIFESP]
dc.date.accessioned 2016-01-24T13:49:38Z
dc.date.available 2016-01-24T13:49:38Z
dc.date.issued 2008-03-01
dc.identifier http://dx.doi.org/10.1016/j.jbspin.2007.07.007
dc.identifier.citation Joint Bone Spine. Paris: Elsevier France-editions Scientifiques Medicales Elsevier, v. 75, n. 2, p. 149-154, 2008.
dc.identifier.issn 1297-319X
dc.identifier.uri http://repositorio.unifesp.br/handle/11600/30505
dc.description.abstract Objectives: To evaluate the quality of life and the disease burden on primary caregivers of patients with juvenile idiopathic arthritis (JIA). Methods: Seventy patients with JIA and their respective caregivers were enrolled in this study. Health, quality of life and psychological status were assessed by using the childhood health assessment questionnaire (CHAQ), the medical outcomes study 36-item short-form health survey (SF-36) and the psychiatric screening questionnaire (SRQ-20). Burden of disease on the caregivers was measured by the caregiver burden scale (CB Scale).Results: Most caregivers were women (91.4%), married (76.6%), mothers (92.2%) and their average age was 37.2 +/- 8.8 years. Low education and socioeconomic state were observed in most of the caregivers. Psychoemotional disorders measured by the SRQ-20 were detected in 34.3% of the caregivers. Pain and mental health were the items in the SF-36 questionnaire most affected in these individuals. Mean score of global burden measured by the CB Scale was 1.6 +/- 0.3 (disappointment and environment had the lowest scores). the CB Scale was significantly correlated with the SRQ-20 (r = 0.6), number of limited joints (r = 0.3), number of visits (r = 0.2), family income (r = -0.3) and mental health (r = -0.6), emotional aspects (r = -0.4), social aspects (r = -0.4), vitality (r = -0.5) and general health state of the SF-36 (r = -0.4). SRQ-20 was the most important determinant of CB Scale and of the components pain and mental health of the SF-36 questionnaire.Conclusions: Most of the disease burden on the caregivers depends upon emotional aspects rather than on the physical status of the patients. (C) 2007 Elsevier Masson SAS. All rights reserved. en
dc.format.extent 149-154
dc.language.iso eng
dc.publisher Elsevier B.V.
dc.relation.ispartof Joint Bone Spine
dc.rights Acesso restrito
dc.subject arthritis en
dc.subject juvenile idiopathic arthritis en
dc.subject caregivers en
dc.subject quality of life en
dc.subject burden of disease en
dc.title Quality of life and impact of the disease on primary caregivers of juvenile idiopathic arthritis patients en
dc.type Resenha
dc.rights.license http://www.elsevier.com/about/open-access/open-access-policies/article-posting-policy
dc.contributor.institution Universidade Federal de São Paulo (UNIFESP)
dc.description.affiliation Universidade Federal de São Paulo, Div Rheumatol, BR-04023900 São Paulo, Brazil
dc.description.affiliation Univ São Paulo, Dept Pediat, Pediat Rheumatol Unit, São Paulo, Brazil
dc.description.affiliationUnifesp Universidade Federal de São Paulo, Div Rheumatol, BR-04023900 São Paulo, Brazil
dc.identifier.doi 10.1016/j.jbspin.2007.07.007
dc.description.source Web of Science
dc.identifier.wos WOS:000255545200009



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